Action for Aidan 5K Trail Run/Walk

20221223
2019-06-02

Jun 02, 2019 at 9:00 AM

270 Portsmouth Ave

Stratham NH, 03885

USA

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Entry Fee $25
(Lowest or Early Registration)

Entry Fee 2 $50
(Highest or Late Registration)

Prize Money: no

Distance(s):

Type: Trail

Percent of the course on un-paved trails: 100%

First Year of the Event: 2017

Description:

Action for Aidan is a professionally-timed 5K trail run/walk through the beautiful trails of Stratham Hill Park designed to raise money for Hunter Syndrome research. Aidan is an 8-year-old boy from Stratham, NH who has Hunter Syndrome and needs your help to find a cure! Hunter Syndrome (MPSII) is a rare, progressive, and fatal genetic disorder. Boys with this disease are born lacking a critical enzyme that clears cellular waste from their bodies. Children appear normal at birth, but as the cellular waste accumulates enlarged skulls, heart defects, difficulty breathing, joint contractures, hydrocephalus, nerve conduction disease, enlarged organs, hearing loss, recurrent infections, and more develop. All money raised from this event will go to the non-profit organization Saving Case and Friends – the Project Alive Campaign – to support ongoing genetic research by Dr. McCarthy and Dr. Fu and Nationwide Children’s Hospital.